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#23andme

20 posts20 participants1 post today
Public
Bastian Greshake Tzovaras

«#23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem»

I’d argue that data is even more problematic. They’ve always guarded the phenotype data that customers provide tooth & nail, probably as that’s where they saw the profit. Eg you could always download your genetic data, but not your survey responses. theconversation.com/23andme-is

The Conversation23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problemIf you were a 23andMe customer, your genetic and personal information could be used in civil or criminal cases, targeted advertising, medical discrimination and so much more.
Public
JL Johnson :veri_mast:

I'm a little late to the party because I wanted to download my raw data and had to wait in line for that. The report finally came through today.

Dang, what a bummer. I happily paid $500 for my 23andMe way back in the day. It was such a cool idea.

All good things end, I guess...

We have received your request to delete your data and have sent an email to the email address linked to your 23andMe account requesting your confirmation. Please locate this email and confirm your request. Your data deletion request will not be processed until we have received your confirmation.
#23andme
Public
gtbarry

For everyone trying to delete your 23andMe data...you can't

When you press delete on your 23andMe account and data, it will vanish from the site. But a clause in the privacy statement and 23andMe’s adherence to laboratory rules mean that your genetic background is still there, somewhere, in the company’s records.

#23andMe #bankruptcy #DNA #genetics #privacy #biotech #business #technology

sfgate.com/tech/article/califo

Public
Benjamin Carr, Ph.D. 👨🏻‍💻🧬

#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
theregister.com/2025/04/01/ope

The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize itBy Thomas Claburn
Public
Tirrimas :us_distress:

I've got a lot of thoughts about this, but the overriding one is gratitude that these folks finally woke up.

"Tzovaras had hoped that access to genetic data would improve human health and medicine, but now considers that aspiration naive. His 'bleaker' and more 'sober' view today is that providing food security and access to stable housing would have a more significant impact on human health than finding genetic answers to common diseases that follow from social and environmental problems, such as food and housing insecurity."

#openSNP
#genetics
#23andMe
#USPol

Genetic data sharing service openSNP to close down
theregister.com/2025/04/01/ope

The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize itBy Thomas Claburn
Public
mindsets

Having never enabled—indeed, having actively broken!—any overt or covert method of biometric identification ever provided to me by a business (unless for acute medical reasons), I'm amazed that 23andMe had a single customer.

That company would have, like, had to pay me a small fortune to even consider dealing with it. Thus, I don't think any 23AndMe customer can, in good faith, make fun of anyone else for playing #FAFO games. Which are surprisingly popular, in general, lately.

#23AndMe
Public
Healthcare IT Security Robot

DATE: March 31, 2025 at 04:38PM
SOURCE: HEALTHCARE INFO SECURITY

Direct article link at end of text block below.

@FTC: @23andMe's Buyer Must Uphold Co.'s Data #Privacy Pledge t.co/IFNSWyTT6J #FTC #23andMe

Here are any URLs found in the article text:

t.co/IFNSWyTT6J

Articles can be found by scrolling down the page at healthcareinfosecurity.com/ under the title "Latest"

-------------------------------------------------

Private, vetted email list for mental health professionals: clinicians-exchange.org

Healthcare security & privacy posts not related to IT or infosec are at @HIPAABot . Even so, they mix in some infosec with the legal & regulatory information.

-------------------------------------------------

#security #healthcare #doctors #itsecurity #hacking #doxxing #psychotherapy #securitynews #psychotherapist #mentalhealth #psychiatry #hospital #socialwork #datasecurity #webbeacons #cookies #HIPAA #privacy #datanalytics #healthcaresecurity #healthitsecurity #patientrecords @infosec #telehealth #netneutrality #socialengineering

Public
Avoid the Hack! :donor:

A little late, but Week 13 of the #Privacy Roundup is here. I'm just going to blame it on this cold. :blobcatsneeze:

This edition features:

- #Signalgate #signal
- 23andMe's bankruptcy - what's it mean for user genetic data?
- A man banned for life from a venue... based on data collected about him
- Sandbox escapes for #Firefox and #Chrome exploited in the wild (updates available)

... and more!

#privacymatters #cybersecurity #infosec #23andme

avoidthehack.com/privacy-week1

Public
Bastian Greshake Tzovaras

We have decided to sunset openSNP at the end of April. While triggered by the sale of #23andme, @PhilippBayer @i_dabble & I had been thinking about this for a while.

Ultimately, we think that it's the most responsible act of data stewardship given the state of the world. I've written a retrospective of the last 14 years of the project:

tzovar.as/sunsetting-opensnp/

a black and white photo of a person taking a photo out of car on the passenger-side, the person and camera are visible in the side-mirror
Bastian Greshake TzovarasSunsetting openSNP - a personal retrospective
More from Bastian Greshake Tzovaras
Public
Xavier «X» Santolaria :verified_paw: :donor:

📨 Latest issue of my curated #cybersecurity and #infosec list of resources for week #13/2025 is out!

It includes the following and much more:

➝ DNA of 15 Million People for Sale in #23andMe Bankruptcy,

➝ #Trump administration accidentally texted a journalist its war plans,

➝ Critical Ingress #NGINX controller vulnerability allows RCE without authentication,

➝ #Cyberattack hits Ukraine's state railway,

➝ Troy Hunt's Mailchimp account was successfully phished,

➝ #OpenAI Offering $100K Bounties for Critical #Vulnerabilities,

➝ #Meta AI is now available in #WhatsApp for users in 41 European countries... and cannot be turned off

Subscribe to the #infosecMASHUP newsletter to have it piping hot in your inbox every week-end ⬇️

infosec-mashup.santolaria.net/

DNA of 15 Million People for Sale in 23andMe Bankruptcy, Trump administration accidentally texted a journalist its war plans, Critical Ingress NGINX controller vulnerability allows RCE without authentication, Cyberattack hits Ukraine's state railway, Troy Hunt's Mailchimp account was successfully phished, OpenAI Offering $100K Bounties for Critical Vulnerabilities, Meta AI is now available in WhatsApp for users in 41 European countries... and cannot be turned off
X’s InfoSec Newsletter🕵🏻‍♂️ [InfoSec MASHUP] 13/2025DNA of 15 Million People for Sale in 23andMe Bankruptcy, Trump administration accidentally texted a journalist its war plans, Critical Ingress NGINX controller vulnerability allows RCE without authentication, Cyberattack hits Ukraine's state railway, Troy Hunt's Mailchimp account was successfully phished, OpenAI Offering $100K Bounties for Critical Vulnerabilities, Meta AI is now available in WhatsApp for users in 41 European countries... and cannot be turned off
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